When Insurance Companies Fail to Care for Our Children

Anger....Frustration....more Anger. Tomorrow morning Madilyn was scheduled to have a MRI on her spine to rule out the possibility of her having another Tethered Spinal Cord. I received a call late this evening informing me that her MRI has been canceled due to the insurance company not approving it. After trying to calm my nerves I proceeded to call anyone I could get a hold of. First, it was the person who left a message from Children's Hospital. Of course, I got a voice mail. Then I called the insurance company. I was informed that a third party company approves all MRI's and I would have to speak to them. I get person after person. Then I had a lady tell me that it was not approved. Needless to say, I lost it. By the time I ended my rant, I politely told her I hope that she never has a child with Spina Bifida. I told her that insurance companies and agencies like them do not care about the families with children who have special needs. I let loose every ounce of my frustration and was told sorry the doctors office will have to call them.

Today was not the day for this. Especially since Madilyn has no control of her bowels. I have changed her 5 times today. She is 5. She is frustrated and I have waited as patiently as possible to get this MRI. WE need to figure out what is happening to her. Does any care? Does anyone care that her nerves could be compressed at this very moment and once nerve damage occurrs it does not return? Is it because we are honest hard working people and are trying to take care of our daughter that we can't get the care for her she needs? I don't know those answers.

I do know that life is testing me to my mortal limits right now. I have all but lost faith in our Healthcare System. I have done the honest route and it has gotten me no where. I have a child that I would walk to the ends of the earth for and back again if I could make her life better. Does anyone care? Do those who sit in there high places in Washington care? No they don't. I am tired of the petty nature of those who are incharge in this nation. I am tired of Insurance companies that make life so hard even when you pay for their services. I am tired.

Maybe I just need to go to bed. I need to close this day before my head explodes. I am Madilyn's Mom. I am the Mother of an Angel. I pray for her safety and the patience and understanding to deal with those who push me to the edge of my sanity.