You are in surgery at this very moment. Dr. Reisner started working on your back about 30 mins ago. Daddy and I are trying to sit patiently as we wait to get an update on how things are going.
This morning you were sad when we left the house. Berkley was so glad she got to hug you before we left. I wish I could have stopped those tears for you. But, all I could do was tell you things will be ok. Those tears didn't last long once you were snuggled up in your fleece blanket and rested your head on your pillow. We had to wake you up when we arrived at Children's.
Once again, you were a champion this morning. We had some last minute changes to our plan. Dr. Reisner decided he wanted a "cath" in your MACE. Well.... since Dr. Kirsch told us not to worry about it we removed it last night. I had to put a different type of "cath" in for the nurses. It wasn't easy but I finally got it. So, all of that excitement delayed us an hour.
I hope that you are in a happy place in her mind. We talked about all the happiest things we could before they gave you the medicine that makes you loopy! Your bunny and Cinderella blanket that Aunt Carol and Susie made for you are with you. They will keep you safe my sweet Madilyn.
Now the hard part begins....waiting, waiting, waiting. We are so fortunate that Dr. Reisner was able to clear his schedule so he could take all the time he needs to remove the lipoma. He is going to be as aggressive as he can to get it out of there. He wants to keep you safe though so he will do as much as he can. He hopes you will feel your foot again! That would be the miracle we are hoping for.
I love you Madilyn! You are my sweet little princess. I pray that our Heavenly Father will send his angels to comfort you this day. All I can do now is wait until we are reunited sometime today. After all these years you would think I was better at waiting. I am not. I am trying so hard to be as brave and courageous as you are. I will see you soon....
All my love,
Mommy
Thursday, January 20, 2011
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2 comments:
Madilyn is in my prayers today. (and you too) :-)
Mrs. Fields,
I stumbled upon your blog, and reading few of the entries has given me a very meaningful inside perspective about having a child affected by spina bifida. I am inspired by your courage and touched by the pictures of your family that I had to reach out. My name is Courtney Beyer, and I am the new Study Coordinator at VitaPath Genetics. Earlier this year, we successfully completed the first phase of our landmark study looking at the genetic factors contributing to spina bifida. In conjunction with our academic collaborators at Children’s Hospital Oakland Research Institute (CHORI), Stanford, UC Berkeley and UCSF, we recruited over 1,000 women and their child affected by spina bifida to participate.
Our first phase produced promising results but, we believe that it is appropriate for us to replicate this study in a second, independent group of mothers. We are beginning our second study in early January and are reaching out to more mothers to participate. In order to reach as many women as possible, I would very much appreciate if you could include news about the study in your blog. I also have banners and buttons if you would like to post something on your site. In addition it would be great to connect with you via facebook (search SB Genetics) and twitter @sbgenetics.
I would like to get in contact with you to share more information and answer any questions that you may have. Please email me at CBeyer@vpgenetics.com and visit www.sbgenetics.org. This website gives an in depth explanation of the study as well as a link if you are interested in enrolling. Thank you for taking the time to read my note and I am greatly looking forward to being in contact. Good luck to your daughter's swimming career! I swam through college and it is a great sport to be involved with!
Warmest regards and happy new year,
Courtney
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